Norwegian Registry for Hereditary and Congenital Neuromuscular Diseases

The registry contains information on patients with a genetically determined disease in the muscles (myopathy) or in the peripheral nerves (neuropathy) – with the exception of amyotrophic lateral sclerosis.

Criteria for data access

The data sources have different purposes and are regulated by different laws and regulations. In order to access information from the data sources, what you plan to use the information for must be in accordance with the purpose of the data source.

The types of approvals and documents you must submit to access information depend on what you are applying for, what you are going to use the information for and how you are going to process it. We therefore recommend that you take the time to familiarize yourself with the application guides before starting the application process:

Application guide for anonymous, aggregated data (statistical data)
Application guide for personally identifiable data

Apply for access to data

Contact the data holder for more information on how to access data from the registry.

Contact

Elin Golde, registersekretær

Links