Contents of the register
In order to measure the quality of the treatment of patients with heart failure, the register is based on quality measures linked to European recommendations for the treatment of heart failure, which are supported by the Norwegian Cardiological Society.
NHSR provides information on
- who gets heart failure (age, gender, risk factors, previous illnesses)
- how those affected by heart failure are treated (quality of medical treatment, methods of diagnosis, interventions and complications)
- what is achieved by the treatment (quality of life, level of physical function, readmissions and survival rate)
Patient-reported data is collected at two points in time where changes over the observation period are looked at.
The NHSR is connected to The National Population Register to obtain the date of death. Data from and including 2013 is available for release.
Variables
An overview of variables can be found on the website of the Norwegian Heart Failure:
Norsk hjertesviktregister - Nasjonalt Servicemiljø for Medisinske kvalitetsregistre
Open data
The Norwegian Heart Failure Register publishes 12 quality indicators on Behandlingskvalitet
More results can be found in the Annual Reports of the Norwegian Heart Failure Register on the website: Norsk hjertesviktregister - Nasjonalt Servicemiljø for Medisinske kvalitetsregistre
Criteria for data access
The data sources have different purposes and are regulated by different laws and regulations. In order to access information from the data sources, what you plan to use the information for must be in accordance with the purpose of the data source.
The types of approvals and documents you must submit to access information depend on what you are applying for, what you are going to use the information for and how you are going to process it. We therefore recommend that you take the time to familiarize yourself with the application guides before starting the application process:
Application guide for anonymous, aggregated data (statistical data)
Application guide for personally identifiable data
Apply for access to data
You can apply for access to data from the registry via the application forms at helsedata.no.
Prices for access to data
Helsedataservice charges for the processing of applications submitted via helsedata.no, while the data custodians charge for data preparation and making the data material available. Helsedataservice and the data custodians will issue separate invoices.