Planned downtime May 22, 2025 between 13:00-16:00 p.m.

Due to a technical upgrade, Helsedata.no will be unavailable Thursday, May 22, between 13:00-16:00 p.m. We apologize for any inconvenience this may cause.

Norwegian Registry for Organ-specific Autoimmune Diseases (ROAS)

ROAS is a national medical quality registry for patients with Addison’s disease and polyendocrine syndromes. It contains demographic and clinical data as well as treatment data (medication type and dosage). Biobank samples are collected for relevant analyses.

Criteria for data access

The data sources have different purposes and are regulated by different laws and regulations. In order to access information from the data sources, what you plan to use the information for must be in accordance with the purpose of the data source.

The types of approvals and documents you must submit to access information depend on what you are applying for, what you are going to use the information for and how you are going to process it. We therefore recommend that you take the time to familiarize yourself with the application guides before starting the application process:

Application guide for anonymous, aggregated data (statistical data)
Application guide for personally identifiable data

Apply for access to data

In order to apply for access to data, send an e-mail to the registry at addison@helse-bergen.no.

Contact