Bergen Hospital Trust

AblaNor is the Norwegian Ablation and Electrophysiology Registry, established in 2015, with data from 2020. AblaNor is part of the Norwegian Institute of Public Health.

The Norwegian APS registry collects data from hospitalized patients referred to the APS during their hospital stay. These patients normally have difficult pain conditions that don’t respond to standard ward pain care. Patients that fulfill a set of inclusion criteria and give a written consent are included in the registry.

NorArthritis is a national quality registry established to increase knowledge on chronic inflammatory joint diseases in Norway. The registry collects data on patients with chronic inflammatory joint diseases such as rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis. Data are collected electronically by the patients and the treating doctors and nurses, and include the following: patient and disease-characteristics, diagnosis, treatment, and outcome in terms of disease activity measures and scores for function and quality of life.

The Norwegian Arthroplasty Register collects data from all hospitals in Norway on all joint arthroplasties since 1987. The overall aim of the register is that all patients shall receive the best possible treatment, using results from the register to identify the performance of different types of prostheses and surgical methods used in Norway. The goal is to identify poorly performing implants and operation methods as early as possible, and to stop the use of these.

The Norwegian Diabetes Register for Adults is a national medical quality register that contains information about individuals aged 18 and older with type 1 diabetes, type 2 diabetes, or other forms of diabetes.

The Norwegian Hip Fracture Register started recording hip fractures nationwide in 2005. The objective is to detect poor treatment methods and poor-performing implants used in Norway as early as possible, as well as to provide knowledge about epidemiology of hip fractures. The large number of fractures and simultaneous registration of quality of life data (PROM) makes the database unique.

The Norwegian Intensive Care and Pandemic Registry (NIPaR) contains information on all patients treated at intensive care units in Norway, and patients admitted to the specialist health service with infectious disease during epidemics (which include Norway) or pandemics.

The Norwegian Knee Ligament Registry was established in June 2004 to prospectively collect data on all cases of cruciate ligament reconstruction surgery in Norway. From 2017, it also includes non-operative treatment. The purpose of the NKLR is to provide representative and reliable data for future research.

The Norwegian Multiple Sclerosis Registry and Biobank is a quality registry that aims to register all patients with multiple sclerosis (MS) in Norway. Central data are the disease course, and the availability, effect and side effects of treatment that can slow down the development of the disease.

The Norwegian Paediatric Hip Register started with a nationwide registration of the child hip diseases of hip dysplasia, Legg-Calvé-Perthes disease (LCPD) and slipped capital femoral epiphysis (SCFE) in 2010, and of open and arthroscopic hip surgery (not arthroplasty) in 2013. All hospitals that treat child hip diseases report each treatment and operation to the Paediatric Hip Register.

The Norwegian Porphyria Registry is a consent-based national medical quality registry for patients with porphyria. The registry contains both patient-reported and doctor-reported data, which are registered continuously and prospectively.

The Norwegian Register for Long-Term Mechanical Ventilation is a national medical quality register for children and adults with long-term mechanical ventilation (LTMV) due to respiration failure. The register was established in 2002 to improve the quality of healthcare.

The registry contains information on patients who are admitted to hospital with chronic obstructive pulmonary disease (COPD).

ROAS is a national medical quality registry for patients with Addison’s disease and polyendocrine syndromes. It contains demographic and clinical data as well as treatment data (medication type and dosage). Biobank samples are collected for relevant analyses.

Every year, approximately 100 children are born with various types of cleft lip and palate in Norway. Cleft lip and/or palate is one of the most common birth defects in the head and neck region, occurring in approximately 2 out of 1000 live births. The Norwegian Registry of Cleft Lip and Palate collects data from the two cleft teams in Norway, at Oslo University Hospital and Haukeland University Hospital in Bergen. The registry facilitates data collection and data analysis for quality improvement in the two cleft teams.

The registry receives data on bariatric surgery in Norway. Data from the registry will be used to improve patient care, and can also be used for science.