Content of MoBa
MoBa has approximately 285,000 participants, consisting of 114,000 children, 95,000 mothers, and 75,000 fathers. MoBa aims to generate new knowledge about the causes, risk factors, courses, and consequences of diseases and health outcomes, with the ultimate goal of improving prevention and treatment.
General information about health and exposure has been collected through questionnaires from pregnancy onwards. Various types of biological material have been collected from participants. Biodata from analyses performed on the biological material, including GWAS, is also available in MoBa.
MoBa is used by researchers and research groups at both the NIPH and other research institutions nationally and internationally. The research must be within the purpose of MoBa and the participants' given consent. All use of data and biological material from MoBa is subject to the requirements of the Personal Data Act and GDPR.
Variables
Applications for data from MoBa must include an overview of the requested variables. This is done by selecting the variables deemed necessary for the project from the variable lists available here:
Access to Data and Biological Material
You can apply for access to data and biological material from MoBa using the application form for personally identifiable data at helsedata.no.
NIPH is the data holder and processes all applications. We recommend that you contact MoBa before starting the application process.
Application Requirements
The types of approvals required depend on the nature of the data requested, the intended use, and how the data will be processed. Further guidance on the application process and requirements is available here.
To gain access to data, the conditions for processing personal data as outlined in the Regulations on Population-Based Health Surveys (available at lovdata.no) must be met.
Specific Conditions for MoBa
Information about how to apply for access to data and biological material from MoBa, requirements, and what your application must contain can be found on MoBa's website: How to apply for MoBa data (fhi.no)
Legal Basis
MoBa is consent-based and has a legal basis in the Regulation on Population-based Health Surveys (lovdata.no). FHI is both the data holder and data processor.
Prices for Access to Data
Multiple parties are involved in the process of granting access to health data, which means you may receive invoices from more than one source.
Helsedataservice charges a fee for the management of applications submitted via helsedata.no, while the data holders charge for application processing, data preparation and making the data material available. Helsedataservice and the data holders will issue separate invoices.