The included patients are adults with a neck- or back-related diagnosis as their main issue. The registration is prospective, with data collected from both the patient and healthcare personnel during the patient's first consultation, and from the patient again at 6 and 12 months follow-up, allowing for tracking of changes. Data collection is fully electronic (via MRS/Hemit), and patient questionnaires are preferably sent via HelseNorge.
The collected information includes:
- Demographic data
- Employment status
- PROMs (Patient-Reported Outcome Measures) assessing pain, back function, mental health, additional symptoms, health-related quality of life
- Diagnoses and treatment pathways
A fully electronic data capture solution was implemented on October 1, 2020. This transition marks a clear improvement in the data quality of NNRR. Use of data prior to this transition should be evaluated accordingly. The 12-month patient questionnaire was also first implemented on October 1, 2020.
You can read more about NNRR in the dedicated registry description [here].
Purpose
The purpose of NNRR is to improve the quality of care at the specialized interdisciplinary neck and back outpatient clinics. Knowledge from the registry is used to:
- Provide insight into the patient population and the services offered at individual units and at the national level.
- Generate knowledge about factors influencing the course of illness and help direct patients to appropriate treatment options.
- Support evaluation of the structure of service offerings, characteristics of treatment processes, and outcomes after treatment.
- Provide a basis for decision-making for public authorities at both national and local levels.
- After data analysis and definition of quality indicators, the registry contributes to the implementation of improvement projects.
Data Access
Applications for use of data from NNRR should be sent directly to the registry administration. A more detailed description of the procedure for data access can be found [here]. Metadata about variables is available in the Helsedata variable library.